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A Wish for Wendy
Softball tournament benefiting Cystic Fibrosis research in honor of Wendy Carol Lipman who died 15 days after birth from cystic fibrosis.
http://wishforwendy.org
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About TOBI and the Management of Cystic Fibrosis
Information on Tobramycin Solution for Inhalation (TOBI) for pseudomonas infection, by pharmaceutical agency.
http://www.abouttobi.com
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Ambry Genetics
Testing for CF mutations. Offers a comprehensive screening of CF mutations, plus Poly T Variant analysis, and direct DNA sequencing of exon.
http://www.ambrygen.com/
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Billycook.com
Billy Cook battled cystic fibrosis and died. The site generates funding for patients of this deadly disease.
http://www.billycook.com
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Cindy's Friends
Information about the disease, progress being made towards a cure, and fundraising efforts in Tennessee.
http://www.cindys-friends.com
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Cute Petite Chic - A Cystic Fibrosis Web
Basic information with good description of sweat test, memorial page for a girl lost to CF at age 9, details of her last days and link to give in her memory through Great Strides.
http://www.cuteptchic.com
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Cystic Fibrosis Medicine
Provides free information to professionals involved with the treatment of cystic fibrosis. An open access section is also available to both patients and family
http://www.cysticfibrosismedicine.com
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Cystic Fibrosis Research Inc.
News about CF research. Site also has a newsletter available.
http://www.cfri.org/
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Cystic Fibrosis Resource Centre
A source of information for cystic fibrosis patients, parents, doctors and other carers.
http://www.cysticfibrosis.co.uk
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Cystic Fibrosis Services
A subsidiary of the Cystic Fibrosis Foundation and a national pharmacy that specializes in providing medications to individuals with cystic fibrosis (CF).
http://www.cfservicespharmacy.com/
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